Data

Psychosocial data relating to recent trauma exposure is collected by the Texas Childhood Trauma Research Network (TX-CTRN) through survey instruments during participant baseline and subsequent visits. A copy of the collected data is captured each quarter, deidentified, and curated to share as data products for research. Data products currently available with portal access include psychosocial data collected through participant forms and instruments at baseline and predetermined intervals throughout the two-year study:

  • Traumatic Events Screening Inventory - Child and Parent (TESI-C and TESI-P)
  • Clinician Administered PTSD Scale for Children and Adolescents (CAPSCA)
  • Concise Health Risk Tracking (CHRT16)
  • Connor-Davidson Resilience Scale (CDRISC)
  • Demographics

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    THIS PORTION OF THE SITE IS CURRENTLY UNDER CONSTRUCTION.

     

    Forms required for access

    Data Transfer and Use Agreement (DUA)

    Access Request

     

    Questions about research portal access?
    Contact: texasctrn@austin.utexas.edu

Data Products

All data products made available through the TX-CTRN portal login are participant records which have been filtered to remove personally identifying information (PII/PHI) and are further deidentified through the following methods and transformations:

  • Date of birth and dates of service are removed and replaced by “age at the date of the visit” calculated in months. These calculations are consistent with requirements for data publication through the National Institute of Health’s National Data Archive (NIH NDA),
  • Data associated with location have been removed or aggregated into groups large enough to maintain individual anonymity. For example, ZIP codes may be truncated or removed entirely based on the number of individuals represented.
  • Identifying demographics and fields with sparse data are removed or aggregated