Data

Psychosocial data relating to recent trauma exposure is collected by the Texas Childhood Trauma Research Network (TX-CTRN) through survey instruments during participant baseline and subsequent visits. A copy of the collected data is captured each quarter, deidentified, and curated to share as data products for research. Below is a list of the data products currently available with portal access. 

 

THIS PORTION OF THE SITE IS CURRENTLY UNDER CONSTRUCTION.

 

Forms required for access

Data Transfer and Use Agreement (DUA)

Access Request

 

Questions about research portal access?
Contact: texasctrn@austin.utexas.edu

Data Products

All data products made available through the TX-CTRN portal login are participant records which have been filtered to remove personally identifying information (PII/PHI) and are further deidentified through the following methods and transformations:

  • Date of birth and dates of service are removed and replaced by “age at the date of the visit” calculated in months. These calculations are consistent with requirements for data publication through the National Institute of Health’s National Data Archive (NIH NDA),
  • Data associated with location have been removed or aggregated into groups large enough to maintain individual anonymity. For example, ZIP codes may be truncated or removed entirely based on the number of individuals represented.
  • Identifying demographics and fields with sparse data are removed or aggregated